Miss Elliott on ECMO day 1
Brian and I checked up on Elli during the night, and she was staying pretty much the same, still having issues with low blood pressures, it seems that she really likes a high volume of blood runing through the ECMO machine, so they did end up giving her another unit of platelets, a unit of blood and a bolus of Albumin to keep her blood pressure in the acceptable range. She is still having blood pressure issues this morning, but not as bad as yesterday when we were here.
Yesterday the doctors decided to reduce Elli's sedation medications because she was pretty limp, they decreased both her Morphine and Versed drips down to 30 from 50, and we really noticed it this morning when we got here. She even had her eyes peeked open just a little bit and was able to give our fingers a little squeeze. The doctors have not yet made rounds, but we are anxious to hear if they have any new ideas of why Elli's blood pressures continue to remain on the lower end.
We are attempting to figure out how all of this NICU business works, Brian continues to call me a chicken because I get too nervous to ask some questions, like if we can use a laptop, but I finally did, and they said it was fine, so we will be doing a better job of keeping the blog page up to date, the last 48 hours have been so hectic it was hard to find the time to think let alone type on the blog page. I am hoping that I can get some good pictures today when the lights are on, because she is just so darn cute I can hardly resist. Thanks for all the comments, prayers, and words of encrouragment, we are hanging in there, and so is Elli!
27 comments:
One day and one moment at a time. Sounds like things are going okay. We are praying for all three of you to have strength, patience and understanding. Praying for the doctors and nurses to have wisdom, compassion and respect.
God Bless,
Amber & Jesse Thompson
I am glad she is stable now.
I too seemed apprehensive to initially ask a lot of questions. I think for a while you feel like your child belongs to the NICU and not you. I quickly realized however that Livi was my baby and any question I wanted to ask was going to be asked. I may have gotten a little annoying but it was worth it to make sure I was on top of all of her care and she and I were both comfortable.
I can't wait to see more pictures. She is such a beauty. She looks like she weighs more than 6.8, so round and cute.
Keeping you in my thoughts.
Amy Price
We're keeping you three in our thoughts. Cliff, Kristy & Hannah
I am glad to hear that her night was stable. Can't wait to see more pictures of you beautiful little elli. Hopefully more answers today to her low blood pressure. Talk to you soon!! -Kim-
I am so glad that she has picked up a bit since we saw you two last night. I have been thinking about her constantly.
Don't be afraid to ask any questions. That's your little angel and you deserve the right to ask. And don't let B give you any tussle. I have enough dirt on him... he has no right to tease you. :)
Again, let us know if you need anything. We'd be more than happy to do anything we can.
Love you!
-Jenny
P.S. Daddy said last night to tell you that if there was anything he could do from his side of the 'Ville, to let him know.
Keeping you all in our thoughts and prayers. She is a cutie! Jason, Amanda, Madalyn, & Izabella
Don't be afraid to ask questions!! :) One of the best things you can do is utilize all the things you have available (such as wireless service). We could have our phones in the NICU and talk, but couldn't make outgoing calls from the NICU (people could call us and we could answer). They gave meal vouchers for moms who were pumping--even if I just ran down to the cafeteria to grab and orange juice and an apple, it was something.
I know it is a little different with her on ECMO, but don't be afraid to do whatever you can with her (read to her, touch her). Even though she is in the NICU, you are still the parents. :) When the time comes ask about holding, giving baths, changing diapers--everything you would do for a "typical" baby. Being assertive and asking for what you want takes some getting used to, but you will learn what Elli likes and needs.
Hang in there, you are doing an awesome job! Hope they are able to figure out her pressure issues.
Thank you for the update and the new picture of your precious little Angel Elli. She is absolutely beautiful. Do I see a strong resemblance to you, Cassi? I love the picture from yesterday where she was holding your hand, Cassi. We are all thinking of you and praying for strength as you are faced with each new venture in little Elli's journey. you are in our thoughts and prayers.
BeLieVe iN MiRaCLeS!!!!
love to you all,
MaryBeth
I love you guys, and am glad to see last night went better. Please call me as soon as you get a chance.
-Brian
She is so beautiful! Cassi, don't forget to take care of yourself too! Oh, and since when are you afraid to ask questions!!! hehe :)
Thinking of you guys all the time and I'm so amazed at your strength & courage!!
Nicole M
Elli is beautiful!! Many prayers for Elli - strength that she overcomes these hurdles. She will amaze you!! Keeping you in my thoughts and I love to read the updates about your precious little girl. KEEP FIGHTING ELLI!!
Tracy Meats - mom to Ian (LCDH, 4/3/04)
Hello Friends,
We tried to post something the other day, but I don't see it on the list, so I guess that just proves that I do not know what I am doing. We just wanted to get through to say that we are so praying for your little family. Beautiful, sweet girl-- a little angel.
We will keep updated by connecting here. We think you guys are great and trust God's goodness and love for you all in this.
Jeff and Chris
What a beautiful baby. I am thinking of you all the time and praying that God will give you strength and courage during this difficult time. Take care of yourselves.
Y'all are in our thoughts and prayers!
Elli is just gorgeous! If we can do anything please do not hesitate to contact us.
Mike and I are thinking and praying for you guys and your sweet little girl. If there is anything we can do please call. Good luck and stay positive!
love ashley
Elli is beautiful! Thanks for posting pics and keeping us updated. She's a tough little girl!
Jen Miller
Elli is beautiful! Take care of each other and remember, "There are no stupid questions!" Ask Away!Barb & Winny
hello cassi and brian! i am so happy to hear that little elli is such a fighter. she is so pretty too. i have been thinking about you guys since she was born on tuesday. you guys are a beaitiful family and i am so happy that i got to meet you. i will continue to pray for you every day!
god bless
molly girten (one of the labor nurses)
Hey guys glad to hear things are a bit better. Love you both and call me when you can. Praying for all.
Love,
Nathan
Thank you for the updates. Little Elli is beautiful! The pictures are precious. We have been thinking about you three constantly. You are in our thoughts and prayers.
Love,
Colin, Brandi, & Grace Ricci
hey kids,
Just wanted you to know how proud we are of you both and amazed by your strength. We imagined how beautiful your baby would be with you two as parents and boy were we right. She is awsome!!! Hope you two are getting some rest. Hold onto each other for strength as we know you will get through this. Tell Elli gma & gpa V love her, and mom & dad too!
Prayers continued, your a strong family and she is a strong trooper...keep it up.
much love and many blessings
Brian & Cassi,
You have a beautiful baby
girl. You are in our thoughts and prayers.
Love, Oak,Kaylene & Wanda
Praying for you and baby Elli, she is beautiful and I am sure a trooper too! Don't worry, it gets easier to ask questions, I was the same way at the beginning too!
darcy
Mom to Owen-RCDH 3/6/07
http://ittybittyblog.wordpress.com
I'm am so glad that things are going well. I understand this may be a long road ahead, but i know that you two are strong together and will get through this. Our thoughts are with you guys and Elli. I am so happy that you guys were blessed with this beautiful life and I know you guys will be wonderful parents.
There is nothing that can prepare you for what you have seen your little girl go through so far - she will suprise you, she is much stronger and more resilient than you will ever dream of being. Hang in there mom & dad, you have so many prayers coming your way! We love you guys - Craig, Andrea, Cheyenne & Ryder
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