Just a quick update...Elli is doing pretty darn good. The steriods that they gave her seem to be kicking in and helping with the inflammation/oxygenation. The nurses and doctors have weaned her Delta P down to 30, so she is ventilating well. Her gases have looked pretty good throughout the night and she seems to be getting more stable as they try different things. The respiratory therapist also turned down her MAP (mean airway pressure) the amount of pressure that is delivered with each tiny burst of air to between 14-15. As of now her Nitric Oxide is still going and her oxygen is still turned up to about 100%, but her saturations have seemed much better throughout the night and this morning, we even saw them hit 98% for a split second. Since her oxygenation is so much better when she is calm and sleeping, the doctors decided to go up on her sedation. They turned to Morphine and Versed up last night, but it didn't really work. The night nurse ended up giving Elli 5 doses of PRN meds, so this morning they cranked them up again, but clearly our little Miss does not want to be sleeping. Daddy is currently sitting by her trying to get her to close her little eyes, but she is resisting. She was doing the same thing last night when we were trying to leave. Since Elli has been so much more stable through the night and this morning the doctors and surgeons think that is in Elli's best interest to get rid of the silo. The plan is to clean out any old blood or yucky drainage and put in a patch to allow room for the remaining intestines in the abdomen. Hopefully this will decrease the risk of infection and help Elli in general. So I guess the plan is to to have surgery this afternoon at 1:00 to close with a patch. Will post more when we know more.
Recovery Mode!!
5 months ago
19 comments:
Hi, I'm glad she did better overnight. I'll be thinking about you guys during the surgery this afternoon.
Chrissy
I will stay close to my computer and check on you guys. Take a deep breath, Elli is such a strong girl. She is going to be just fine. Don't look at this as scary, but something positive for that one step closer to get her home.
Love,
Kaci
Relax Elli, you will have plenty of time to hang out with mom and dad. You need your rest now.
Sending thoughts your way for surgery today.
Amy
livianasjourney.blogspot.com
That is awesome to hear the great news! I pray the surgery goes great, and that you guys can get some peace and catch up on rest with her doing so well.
Love you,
-B
thinking of you and praying for good news after the surgry. So glad to talk to you this am. Hearing your voice is such a comfort. Wish we could give you some comfort. just remember we love you all and are praying for good days ahead.
Sounds like little Miss Elli just wants to play w/ her mommy & daddy!!
I'm glad to hear she had a good night and that she's doing better!
I'll be praying extra hard today that all goes well w/ her surgery!!
Nicole M
Many prayers for you all this afternoon as Elli is moving forward. Take care of yourselves.
God Bless,
Amber & Jesse Thompson
Wishing you the best as you go through surgery this afternoon. I will keep you all in prayer. I just love the pictures you send of Elli, especially the one with her unhappy face...When I looked at her hair, it reminded me of Grandma Bonny. When we were babies she used to fix our baby hair just like that on top. She is looking down on you from heaven, smiling happily that you put all your faith in God. Again, it is through him miracles happen!
All our love from Newton to Kansas City!
XXOOXXOOXXOOXXOOXXOOXXOOXXOOXXOOXXO
Aunt Jill
I am sooooo glad to hear that elli had a good night. Hope all goes well with the surgery today. I will be praying for all 3 of you.
-Kim-
cassi and brian and lillte elli,
the grils from st francis first floor and all wishing you luck today and sending you many prayers on a successful surgery today.
lynn, kara, melissa and shirley
Will be thinking of you all and praying for you this afternoon. She is such a fighter! God has a plan for that little one!
Sending extra prayers as Elli has her surgery this afternoon. Many thanks for keeping us all informed of Elli's progress. She's a tough cookie! I love the new pic of Dad changing Elli's diaper! Way to go Dad! Look forward to the news of Elli after the surgery.
Amy, Gehard & Emma
Will be praying for her quick recovery on this next phase. Marco also had an abdominal patch (removed later-when it served its purpose), they mentioned it would have to be removed eventually and they did before we were discharged.
Elli has proven to be a strong little girl!! Keep fighting!
Ana
Mommy to Marco
That a girl Elli-what a fighter!!!! Praying for a smooth surgery!! All of my love-Salena
We've been keeping up on things. Your website is amazing. Elli is a beautiful little girl and seems like a real fighter. Good luck with the surgery today. As you can tell from the number of hits on this website, you've got tons of people checking up on you. We just wanted to let you know, you're all in our prayers.
Susan, Melissa, Jessica, Clemente and Martha
Hopefully things went well/as planned with surgery this afternoon. What a determined little girl! :) She doesn't want to miss a thing, especially her mom and dad. Rest up, Elli and keep up the great work!
So glad to hear that Elli rallied last night. Keep up the fight little girl. You are in our thoughts and prayers.
Jason, Angie, Jacob and Kasey Lang
Way to go,Elli! I am glad your numbers are doing better. We are praying for you as you go to surgery.
Give each other a big old hug and know it's from us.
God guide and direct the surgeons and caregivers of Elli. We praise You for the strength and blessings you have given us. We trust in You and ask that You guide and direct us in all that we do. In Jesus name I pray. AMEN
I love you all 3!
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