Elliott Arcile Reed

Elliott Arcile Reed
6 lbs 8 oz 19 3/4 inches

Sunday, September 14, 2008

Now What...

First and foremost, Brian and I must thank everyone for their amazing support during the last week. Knowing that so many people have continued to follow us on our journey and have never stopped praying for us has brought us to tears on numerous occasions. The outpouring of support at Elli's visitation and funeral touched our hearts so deeply. Seeing our friends and family has helped both Brian and I. So many people said "I just don't know what to say" during the last several days, but in all reality, Brian and I know that there are no words, but the heartfelt hugs have made all the difference. We are still in awe of the amount of people that have followed Elli's blog. We have received cards and letters from "bloggers" that we have never even met. It just blows my mid that our sweet Elli could touch so many people, enough for them to take the time to send their sympathies to her parents. We knew from the beginning that Elli would be a special gift, but we had no idea the impact this single baby girl would have on not only her family and friends, but an entire community and beyond.
For those who were not able to attend the visitation or funeral, just know that it was beautiful. We feel that it was such a fitting tribute to our little Angel. The morning that Elli passed away, the sky opened up and it was raining. We felt that it was so fitting that God mourn the passing of Elli as we were also in mourning. It continued to rain the entire week off and on and even continued during the visitation. On our way to Iowa Saturday morning, the rain had slowed, but it was still misting. As we were about to the cemetery, the sun finally appeared between two dark clouds and was shining down on the cemetery. We felt like this was a sign not only from God but Elli. We had been so confused and sad wondering through the week. It was like they both knew that this was a way of showing us that Elli was finally going to be laid to rest and that she was happy being right at home with the Lord.
As for the burning question, Now What? Brian is going to go back to work this week for the Township and I am going to finish packing up the house. We are not planning on moving until the weekend of October 1st. As far as moving goes, Brian already has his job lined up, he is going to be a Farmer with my dad, so harvest will help keep him busy. And for me...I don't know quite yet. My plan was to stay home with Elli so I hadn't even looked for a job. I guess luckily as a RN I will be in high demand, so finding a job shouldn't be that hard considering that Council Bluffs and Omaha have numerous hospitals and they are only about 30-40 minutes away from where we are moving. I am contemplating finding a job somewhere as a NICU RN. I want to feel like Elli's journey and passing were supposed to teach both Brian and I something. I don't know if our experience would be able to help others going through and facing difficult decisions. In one aspect I know it will be so incredibly hard to be around so many sick babies, bringing back so many memories of our stay with Elli at CMH. On the other hand, I feel like I have seen just about the worst things that can happen and so want to be around other babies. As for now I am still going back and forth on it, and might just go back to regular nursing and ease back into it. It just seems so odd. I know that I gave birth to Elli not even a month ago, and yet I am sitting home alone. The house feels so empty (Brian is out hunting). I had imagined months ago when I was just lying around waiting for Elli to come, that I needed to enjoy these last lazy Sunday afternoons, because once Elli was here they would be few and far between and I would be wanting to do "nothing" again. Now the quietness of the house is so disheartening and I feel like I need to fill the lazy Sunday afternoon with something to do. Maybe this is all coming to a head because this is basically the first time that I am alone. We have had family and friends around us constantly for the last week, or at least we were with each other. I knew that things would be going back to "normal" after the funeral but it is still so hard. I am glad Brian is out hunting with his dad and our nephew to get his mind off this whole thing for a while. I guess I am going to have to find a couple hobbies considering I am still on "maternity leave". Okay this is getting long and I could ramble forever, I guess I will clean the house (those of you who know me personally understand my OCD) considering I have neglected it a little the past few days.
Again thank you for all who have sent your thoughts, prayers, and attended the visitation and funeral. It all meant so much to us.
We will all continue to miss you Elli, every day, every hour, every minute, every second. You will NEVER be forgotten. Your mom and dad love you more than anything. We still get to see your beautiful smile in our dreams. Our hearts are still heavy with sadness, but we know that you are much happier in heaven than you were here on earth. We love you Elli- Mom and Dad

29 comments:

The true struggle of a lesbian christian said...

cassi,
Right now you are wondering now what? when the time comes you will know what you want to do. Even if you were to go back into regular nursing for awhile doesn't mean you can't then go to a NICU. I think Elli has taught everyone a lot along with you and Brian as well. I could go on and on about what the three of you have taught me. Things about life and love that I knew but was starting to in away take for granted. I just wanted to say I me and Andrea have been thinking about you guys and thanks you for sharing you have impacted my life in many ways you and Elli both from your words and your strength in times of difficulty.

creagray said...

Cassi,
I didn't get a chance to tell you, but I want you to know how much I admire you and Brian. You have been so strong, and it is so easy to see how much the two of you love each other and Elli. Thank you so much for sharing Elli with us, she has taught me that I need to hug my girls a little tighter every chance I can. Thank you for showing such strength and courage and for allowing so many people to get to know and love Elli. I will keep you in my thoughts and prayers.

Rachael

Unknown said...

hey cassi and brian--your family has been in my thoughts so much over the past month. i know that nothing i say will bring elli back but i just wanted to let you both know that you are two of the most amazing people i have ever met. i know i only spent a day with you guys but i could tell that the amount of love and respect that you have for one another was truly endless. i feel lucky to have met you! i promise you that you will feel better with time and elli will never stop watching over you. (cassi---as crazy as this sounds, this experience will make you an even better nurse (if that is possible)) you are in my thoughts and prayers! hang in there.
molly (your labor nurse)

Mary T said...

Cassi,
I'm one who didn't know what to say to you or Brian. As you know, there are no words to comfort you. Yet we want to say the right thing and it seems so impossible to be able to do that. I hope all the hugs you received did help some to know that so many love and care about you both and Miss Elli. As has been said so many times already, she certainly touched my life in so many ways as have you and Brian. It's so wonderful to see you and Brian, it's obvious to see that you are both so in love with each other and to know that Miss Elli was a part of that love. I know she knew how much you loved her and that she knew you were there with her, I am amazed at how she fought to stay awake when you were at her side. She didn't want to miss anything. I follow several Caringbridge sites which is very much like Miss Elli's blog and not one of "my kids" has fought any harder than Miss Elli did. If and when you decide to go back to work, you'll know what is right for you to do, whether it's in the hospital or in the NICU. I'm sure you would be great in the NICU, not only for the sick babies but for their parents because you've already been through their journey, you would be able to give the parents great support as well as their babies. And I'm also very sure that you are great in the hospital, too. I can say from the experience we had in the NICU at the University/Clarkson, when Dan & Michelle's baby was born that the nurses were special, they were caring and compassionate. What ever it is you decide to do down the road, you'll be good at it. I'll still be checking in on you several times a day and sending up prayers for you and Brian. I'm sorry I missed the visitation, I wasn't able to come and hated it that I had another commitment that I wasn't able to get out of. I hope you know my thoughts and prayers were with you. The service was very nice. I pray that the healing begins for you. I know I've said this before but if there is anything I can do, please let me know. Just know that I'm thinking about you often and loving you all. May you be blessed with Angel Kisses everyday from your precious little Angel Elli.

Love you both,
MaryBeth

Adam, Allison, Kaitlyn and Lauren said...

Cassi and Brian,

We continue to keep you and your families in our prayers. I have been getting caught up this weekend on your past posts and can see how special Elli is to everyone.

Our little girl was 2 1/2 pounds when she was born and we spent about a month in the NICU at Overland Park. The nurses do play such a critical part in the care of our babies and I know that you would be one awesome NICU nurse and an inspiration to other parents!

cbgricci said...

Brian and Cassi,
The funeral was beautiful. I was thinking the same thing when the sun shined through the clouds on Saturday. I actually told Colin, "the sun is shining for little miss Elli, she is smiling down on us all at this very moment!" We have continued to think about you all weekend. Wondering how you were doing? We actually talked the whole way home about how we admire the both of you. Your strength and love for Elli and each other is amazing! God has so many wonderful things in store for you both! Thank you for writing. I have looked forward to hearing from you every day, I don't know what I'm going to do if you don't blog anymore :) Please keep in touch. Let us know when you are ready for company. The dogs would love to play together. We will continue to pray for brighter days!

Love,
Colin, Brandi, & Grace Ricci

Jen said...

Like you said, there are really no words, just know you have our support and prayers. Elli did touch many, many people with her amazing fight and she will never be forgotten. You both have shown amazing strength throughout everything, and I admire you both. Sweet Angel Elli is watching over us all.

Jen Miller

Grandma Reed said...

Cassi,
I have received so many comments on your writing abilities. You write from the heart. Brian has said he has never met anyone as loving as you. The gentleness in your eyes and touch with Elli was amazing. God's plan doesn't always go as we'd like, but He does have a plan and even moving to Iowa is part of it. As much as I will miss you and Brian, somehow there is peace in that now. The "Money Pit" and all just seems to be falling into the plan. It would not surprise me in the least to see you working in a NICU. I love you, Cassi. And I will always love you all 3.

mommy to Kaden, Brody and angel Ava said...

I think that is the hardest question to find an answer to after losing a baby. Your right, it does get really lonely when you are by yourself for the first time because your life is so consumed with family and friends which helps keep your mind off of things. Amazingly life does return back to a normal, although your normal is now different then it was before.

About you being a NICU nurse. I think that you would make a wonderful NICU nurse, not only for the babies but for the families as well. You have been through so many experiences that a lot of other NICU nurses haven't and that will allow you to feel even more compassion and understanding towards those families. I understand though that it will be difficult but I have heard that the rewards are so worth it.

You have been blessed with such an amazing gift, and she taught you more about life then any other person could. Whatever you do, you will bring lessons learned from Elli into it, whether you know it or not. You both continue to be in my thoughts and prayers and honestly I check your blog every day. I hope that you continue to post every now and then. I know that I find it very helpful when I want to vent, talk to Ava, or need advice.

Take care of yourselves and get some needed rest.

Amy

- said...

B and Cassi,

Thanks so much for the update. We have been wondering.

I do have to agree and say the visitation and funeral were beautiful... very fitting for little Elliott. Even Jus and I said that God had to be letting you know something by parting those rainy clouds long enough for the funeral. I'm sure He was just letting you know that he will be taking great care of your precious little one.

I also wanted to say that I appreciate all of your messages and that you shared your journey with everyone. Elliott taught all of us so much and I am so glad that you could do such a fantastic job of teaching us all about CDH. I am also glad I had the opportunity to meet such a courageous fighter. She was an amazing little girl and has shown so many not to take everything in life for granted. That is truly inspirational.

I know you hear this a lot, but you know we're always here if you need anything. All you have to do is let us know. We love you so much.

-Jus and Jenny

Mary T said...

Cassi ~ Some people only dream of angels. You held one in your arms.

May you be blessed with Angel Kisses everyday from your precious little Angel Elli.

love you,
MaryBeth

kmm0305 said...

Cassi--Thank you for sharing the details of Elli's visitation and service. Amy P. told me about it, too. It was a very dreary week last week and now we are supposed to have lots of sunshine--thanks, Miss Elli!

If your heart is leading you to be a NICU nurse, I say follow it. We had some wonderful nurses at Children's and you would be a great asset there! One nurse that stands out in my mind was one who had a baby go through the NICU. She had that "first hand" experience and was the one who thought to ask us if we had held Leah yet (no) and got us all set up.

I know you don't know me from any other stranger off the street, but I just wanted to extend an offer to meet up. I know its a little bit of a trip to Des Moines, but let me know if you ever make it over that way. We also make it to Omaha about 1-2 times a year.

Please know that we are thinking of you both and Elli.

Kristyn

Amy AKA "Baba" said...

Oh Cassi, If I could I would come clean your house with you, order pizza, watch a movie, cry...whatever. I know I sound like a broken record but I am so sorry you are going through this.

You are such amazing parents and Elli was so lucky to have you. I don't have any grand advice on your path from here. I think you will know it when you stumble upon it. I do know that you would be such an amazing asset to any parent with a child in NICU. You have such compassion, gentleness and strength to offer someone in such a delicate situation.

I will continue to visit Elli's blog with each update from you and Brian. I am thinking of you often and appreciated the opportunity to meet you on Saturday and say goodbye to Elli in person.

Amy
Livianajourney.blogspot.com

Amy (Meyer) Lewis said...

Cassi,
I have been meaning to leave you a note since last week. I haven't stopped thinking about you and Brian and my heart hurts for you. I was in Chicago for work last week and I should've known better than to read your blog while at work - people there were probably wondering who the crazy person from KC was that couldn't stop crying! Anyway, please know that I will continue to pray for you and Brian to find the peace you deserve. I came across this quote last week: "Death leaves a heartache no one can heal. Love leaves a memory no one can steal." Elli's memory definitely will not be forgotten. She was certainly beautiful like her mother! Love you, hang in there honey~

Amy (Meyer) Lewis

Tracy Meats said...

Cassi and Brian - you both remain in my prayers as you continue to heal and mourn your precious angel. Thank you for sharing the pictures of you both holding your little girl, very precious. Sometime in the future, if you ever need to talk or want to share Elli's story and life with others who have been affected by CDH, please check out Cherubs. There are so many people who would love to hear about Elli and we all are there supporting each other through so many different life events. The website is www.cdhsupport.org.

Many prayers,
Tracy Meats - mom to Ian (born with LCDH, 4/3/04) and Wyoming State Rep. for Cherubs

Jennifer said...

You will continue to be in my thoughts and prayers. I'm glad you were able to have such a beautiful service and your beautiful baby girl is looking down on you now.

My Three Sons said...

Cassie and Brian,

I just want to let you know that I will continue to pray for your healing during this difficult time. I know that you only had Elli for 20 days but to me that is something I will always envy. Back in 2004 I was almost 7 months pregnant and lost my daughter. We found out later that she had a heart condition that was never spotted on the ultra sound. So I would have given anything for those 20 days. To this day, I still wonder all the what if's of her and her life.

I was also in EMS during this time frame and did go back to work after taking a little extra time off. If anything, I think I became more compassionate for the families of critical patients. I think that NICU is a job for a very special person and what a great way to honor Elli than you helping other babies and their parents. You now have a complete understanding of both sides and that is such a powerful tool when dealing with other families. When we read your blogs, you have that quality that everyone can see. You do have the compassion and love and I think you will do awesome. If I was to ever get in a situation again where I would need a good nurse for my little ones, I would pray for someone like you to walk into our room!

Please try to stay in touch. I do travel to Council Bluffs about twice a year for my middle son. He usually ends up with two soccer tounraments a year up there and I think our next trip there is April 09. Maybe if you have the time, we could grab lunch.

Please take care and try to feel a little peace in knowing so many people are praying for you everyday.

Kaci

Heather said...

Cassie and Brian,

I am so happy to hear that Elli's service was just as beautiful as expected. It is so hard to understand how the hardest day of your life could also be one of the most beautiful. It is a big responsibility to be the parents of these miraculous angels. Just know that you and Brian along with your precious Elli have already made the world a better place. You have brought out the best in yourselves as well as all of those who have followed your journey.

I have no words for the next phase you are beginning today. We are just taking it one day at a time (or one second at a time). Matt went back to work last week and I think that is helping him. I am not planning to go back until January so I have found myself searching for what is next for me too.

You both will remain in our prayers and know that we will always celebrate Elli's birthday as we celebrate Will's. Perhaps one year we could get together for our celebration of their lives :-) I find it so rewarding to know a couple who can also see the blessings that our children brought us. The grief and the mourning are definitely out weighed by the beauty and joy.

Thank you for sharing Elli with us. I am sure she and Will are having lot's of fun in heaven

((((HUG))))

Heather said...
This comment has been removed by the author.
Brenda Neff said...

Now what...? This is something I battled for a long time, even after I thought I knew what I should be doing. Nothing will go back to the way it was before, the absence of Elli is now a part of your life, just like Abby is ours. I was told that for a long time we will just be "surviving" and it will take a while before we start "living" again. They were right. Just take it day by day. There were some days that the most productive thing I did was get out of bed, but hey, I got out of bed. If there are days you just want to throw the covers back over your head and stay in bed, do it and try to get out of your pj's tomorrow. Take your time and don't rush back to being busy all day if you don't have to. That will come soon enough.
We're praying for you guys.
The Neff's

SalenaZarb said...

Cassi-I am here for you always!! I know you and you will take this experience and help others! I just want to tell you that after our loss I never thought I would be able to work in OB ever again, but I truly believe that it has made me a better nurse!! I love you Cassi, you and Brian amaze me more every single day!! Please do not hesitate to call if you need anything-no matter what time of day or night!!! All of my love-Salena

abby taylor said...

Brian & Cassi
The two of you continue to amaze Jon and I everyday. Elli has touched so many people throughout her life. You guys have made me realize how important it is to take nothing for granted. Take everything one day at a time and you will get through this tough time. Thanks for keeping us updated with the blog. It was good to see you Cassi.

Abby

Emily said...

Cassi,
You may find it amazing that most including myself draw to this blog and you probably wonder why? There is so much to learn. Humanity, compasion, fear, faith, trust, the unknown and most of all love.

Don't worry you will get through one day, then another, and another and finally there will be a day when you can remember Elli without your tears. It may not seem like it but one day it will not hurt as much. I will be honest I lost my sister at a young age and it has been ten years and I still thing of her every day. Seriously everyday so don't worry about forgetting it won't happen it will only change. You will remember Elli and talk to her and tell her you will see her again some day and you will be warm with love.
Emily's mom

nicole said...

I wish i had a crystal ball to look into and tell you about the "now what's"
I think you will make the most amazing NICU nurse EVER! You have been where these parents are and just think how much extra support, love, & care you will be able to provide to these families and their babies.
I'm sure being around all those sick babies will bring back memories of Elli, but think what an amazing gift you can give these parents. And what a wonderful place to feel Elli's spirit and honor her.
I feel honored to know you & Brian. You guys and Elli have touched so many people around the world.
Lots of continued thoughts and prayers for you all!
Love, Nicole M

Mary T said...

Good morning, Cassi,
Just thought I'd see how you are doing today and let you know you have been on my mind.
I have been thinking about you and how you are thinking about being a NICU nurse. What a way to honor Miss Elli, to carry on her legacy. I know you would be great with the babies and their parents. Whatever you decide to do, there's no doubt in my mind that you will be fantastic at it! Take your time, don't rush back to work, you have to move back to IOWA and get all settled into the MONEY PIT!
I hope and pray you are doing as well as you can. There are so many people out here who are here for you. We don't want to be pushy so if you need anything, anything at all, please let one of us know. Praying for strength, love, peace and understanding for you. You are AMAZING, and you passed that on to your beautiful Angel Elli.
May you be blessed with Angel Kisses everyday from your precious little Angel Elli.

Love you,
MaryBeth

Dawn Nolan said...

I just found your blog through another CDH baby blog. What a beautiful tribute to your Elli. She was just gorgeous and you gave her so much love. My heart and prayers go out to you.

Dawn
Punta Gorda, FL

bridge said...

still thinking bout you lots. hoping that one day i will be half the parent that you two have been. also wanted to say thanks for the bracelets. and...i know that the two of you are moving soon, so...be sure to let us know when your coming back to town for a visit. bridget

andrea said...

Hey Cassi,
Hope you're hanging in there. You're in my thoughts every day and I wonder how you're doing. Know that you continue to be in our prayers. Oh, and if you don't mind will you post your new address? Andrea

Dotty said...

thinking of you, please know you are in our prayers and thoughts!
Dotty mom to zachary, lcdh 10-26-07