Elliott Arcile Reed

Elliott Arcile Reed
6 lbs 8 oz 19 3/4 inches

Sunday, August 31, 2008

Off ECMO

As of about 2:00 this afternoon, Elli has been off ECMO. Because of the increased bleeding from around her silo, the doctors were forced to speed up the weaning process, and the surgeons were called to decannulate at 1:30. It was a few rocky hours after coming off, her blood pressure dropped very low 30's/20's. The nurses had to give 2 normal saline boluses to try to keep Elli's pressures up while they waited for blood from the blood bank. Elli has gotten 2 blood transfusions and a unit of platelets since the surgery and her blood pressure is just now leveling out. It is not as high as it was before surgery but it should improve once her blood volume is back to where it needs to be.
As far as how well she has been doing oxygenating and ventilating, the oxygenation part is going well but the ventilation (blowing off carbon dioxide) is improving. Elli's blood gases have been pretty good, and are getting better. The last CO2 level was 65 down from 89 (normal range is 35-45) so they changed around the vent settings a little bit, and now are holding them where they are. Currently Elli is still on the conventional vent with nitric oxide, but the daunting "jet" vent has been pulled into the room in case it is needed. As for now, if her CO2 levels continue to decline, she will probably get to stay on the conventional vent. Elli is still pretty knocked out because of the amount of Fentnyl (pain med) that they gave her during her surgery, apparently little Elli didn't want to fall asleep for the procedure and they had to give her a couple extra doses to get her to cooperate. The nurse did end up having to put another IV in Elli's head because the surgeons were unable to place a Hickman central line during the decannulation, so we are still left with the midline placed earlier today and now a scalp IV. Super Brian (who got the midline earlier) is now attempting to put in a PICC line. X-Ray is here to verify placement, so hopefully it is in the correct spot. I guess that's all for now, will post later if there are any changes. We are praying for a quiet night, and that Elli will continue to prove how strong she is.

15 comments:

Snevets said...

We are praying with you, and pray for Elli to keep being as strong as ever. :-)

Darla said...

Elli, Brian and Cassi,
I am praying for you and will request prayer tonight at church. Be Strong and courageous.

Jennifer said...

I pray Elli stays strong and continues to improve.

"Auntie Staci" said...

Still hanging in there baby!! Auntie is cheering you on!! Love you baby!! Im doing really good up here, gallbladder gone feels awesome!! I miss you and love you all very much!
Love ,
Auntie Staci

Roger & Ann said...

Hi, guys, sounds like you and Elli had a good weekend, we are praying for you and little Miss Elli, you realize that she is in control of your lives now and forever, don't you. We pray that Elli will continue to shock the Drs. will all her strength, she wants to be held by her Mom & Dad too. God's blessings, Ann & Roger

kmm0305 said...

Hope you can stay strong through the night, Elli! You are doing so amazing--what an awesome little girl you are.

Kristyn

amberthompson said...

Lots of prayers headed your way!

Amber & Jesse Thompson

gma2be said...

Our little angel taking such big steps! Great Gpa &gma send love. Uncle Tim & Aunt Tracy sending love and prayers. You 3 are in our thoughts constantly. Thank you sooo much for the blog. What a story for our little angel to read some day, of her strength and the incredible love of her parents! love you all! hugs and kisses to Elli

jillc said...

Thinking of you always and keeping you all in our prayers. Brian & Cassie you are truly amazing, you updates are so imformative Thank You for sharing. Hugs to you all.
Jon & Jill

Liz Rich said...

That is wonderful that she is off ECMO (even if it was a little quicker than you'd planned for)--praying for her to continue to improve! Come on Elli--let's give some super blood gases!!!!
Keeping you, Elli & Brian in our prayers.
Liz
Mom to Par (LCDH 11/1/07)

CKHBailey said...

Lots of thoughts headed Elli's way, sounds like she's quite a little fighter!! Cliff, Kristy & Hannah

Auntie Annie's Mom said...

Sounds like you've been through some trying times today, but I'm sure Elli has been as strong as ever. Get some rest, Mom and Dad. Sorry to be so repetitive, but remember, we're all praying for you and little Elli! Carol Mathes

Grandma Reed said...

I pray the blood gases keep getting better and that Elli won't need the jet vent. I love you Brian, Cassi & Elli. I pray tomorrow will be a boring day and that you get a good nights sleep.
Elli you are remarkeable! A winner like your Dad & a fighter like your Mom, that just makes you remakable!!!You've got he strength.
Love you all 3!

Jen said...

Yay, Elli!! It's such a big hurdle to come off ECMO and it sounds like Elli is doing fantastic. Keep it up!

Jen Miller

mommy to Kaden, Brody and angel Ava said...

I hope that Elli has gained strength after getting more blood and her blood gases continue to improve. That jet vent sucks. She is definitely feeling all the love you two have for her, that with all the prayers are keeping her going. She is proving her srength every second, she is absolutely amazing!!!

Thinking of you all and keeping you in my prayers.

Amy