Right before shift change the nurses got a set of blood gases on Elli and her CO2 was back up to 74 so on the oscillating vent she went. Dr. P who has basically been in Elli's room all day pacing back and forth (especially those first few hours after she came off ECMO) discussed these most recent blood gases with the Neonatologist that was in house Dr. T and he decided that it would be best for Elli to go on the oscillating vent. Of course we had to leave for shift change and so when we got back they had done another set of gases that were only slightly improved, but as of 10:00 Elli's gases were PERFECT! What a little champ, she really likes the oscillating vent. Her color looks so much better and her blood pressure is finally up where it was before she came off ECMO. Also, it looks like her bleeding around the silo has pretty much stopped. There does not appear to be any new oozing from that area or around the abdominal tube (there had been a steady trickle from it earlier this afternoon). Apparently the Heparin is finally getting out of her system, and she is peeing like a champ which also helps to excrete the Heparin. So all things considered from this afternoon, Elli is pretty stable. Dr. P even turned down her vent settings at 11:00 and is going to get a blood gas at midnight to see how well she tolerates it. We are planning on staying at the hospital until that gas gets back, then we might go get some shut eye. Elli did wake up just for a few minutes this evening when she had a chest x-ray taken. Dr. P wanted to see what Elli's lungs were looking like. He showed Brian and I the x-ray and it looked pretty good. Her right lung looks well inflated with a questionable small area at the very top that looks like it might be a) collapsed b) pneumonia 3) hematoma area where the ECMO cannulas came out. He is going to keep a close eye on it over the next few days, but if it is pneumonia, Elli is on antibiotics. If it is a collapsed area the "jet" from the oscillating vent will "knock it out" so to speak. And a hematoma will resolve itself, so pretty much all bases are covered whatever the reason might be. Dr. P also seems to think that the little left lung "nubbin" looks like it is inflated. He showed us on the chest x-ray but it was pretty hard to see and you really had to squint. I guess any lung tissue on the left side is better than nothing and it wont hurt if it is helping the right lung out. I guess that's about it for tonight. Hopefully all will be well in the morning. I am sure that I am going to have to call at 2 and 5 when I pump just to make sure she is still doing okay. It's almost midnight now, waiting for the gases then off to the RMH. Thank you to everyone that has been checking the blog and leaving comments. I think that today was even more stressful then the day Elli had surgery. She is defiantly giving mommy and daddy some grey hairs, but they will be worth it when we get to take her home.
Recovery Mode!!
5 months ago
16 comments:
Yeah Elli!
What a trooper, she is doing so good! I am so proud of your little girl:)
Keep getting stronger little lady!
Still praying!!
darcy
http://ittybittyblog.wordpress.com
She is an real fighter and I am so glad she is hanging in there. Still praying for you!
That little girl of yours is a champ!! Way to go Elli, keep up the good work!!
Nicole M
What a day! I hope you can all get some rest. Thanks for keeping up the blog. We are all wondering and praying. I can't imagine if you tried to keep everyone informed by phone how difficult that would be and how much time that would take you away from your precious time with Elli.
Awesome baby, awesome parents!
God bless you all.
Nancy
Yay Elli! She sure sounds like a champ. Sending prayers for a stable night and good test results.
Paula
I know you don't know me but I found your blog through the Parker Reese Foundation (I have been a follower of Jess's blog for about 2 years). Just wondering- will the left lung grow any on its own or will it always be a "nubbin" as you call it? I know when babies are born prematurely they can be given a corticosteroid shot to help with lung development. Is this something that would/could benefit Elli?
Glad to hear she is doing so well and I pray she continues to improve.
"But He knows the way that I take; when He has tested me, I will come forth as gold." ~Job 23:10 (NIV)
Yay!!! So glad to hear good news. Carter says "Go Elli!"
Sounds like Elli and the HFOV get along well, hopefully it will let her recover and get stronger and progress back to the conventional vent soon. Even though it is Labor Day today, Elli, make sure you rest and get better! :)
Yea Elli! You are such a strong little girl! Hope your mommy and daddy are getting some rest so they will be ready when it's time for you to come home! (To new furniture!!!) I will continue to pray that everything goes well and continues to move forward!
God Bless,
Amber & Jesse Thompson
What a day you all have had! I hope today goes much better. Tell Elli we love her and are so glad she has you guys stamina. Thanks to everyone who is praying for her and you guys. God is watching over us.
Love you all 3.
Way to go Elli! Such good news to wake up to. Gpa & Gma miss seeing that beautiful face, thinking of you all the time. Keep getting stronger so we can come and see you. (mom and dad too!) We miss you all very much. Hugs & kisses to Elli!
Great News!!!! Go Elli, Go right lung and GO NUBBIN!!!!! We are still praying for all of you--keep strong! Par sends a high-five to Elli!
Liz
Mom to Par (LCDH 11/1/07)
Praying for you Elli - stay strong and keep improving beautiful little girl! (((HUGS))) to the Reed family. She is doing so wonderful, from reading your updates.
Tracy Meats - WY State Rep. for Cherubs and mom to Ian (LCDH, 4/3/04)
I'm glad Elli is doing well, even though it's been stressful! We are still praying.
Yay to Elli for kicking some tail! We are so proud of you, little one. You continuously amaze us with your strength and determination.
B and Cassi, if there is anything we can do from our side, you know we're always here.
Thanks for all of the updates. Love all three of you.
-Jus and Jenny
Wow, you sure got a lot posted in the one day that I missed. I'm so glad to see how well Elli is doing. I'm keeping your family in my prayers.
Kaci
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