Elliott Arcile Reed passed away this morning at 5:10 am in her mommy's arms. After a long hard battle. We had seen her go down hill the last three days. After finding out we had exhausted all the means possible, were about to venture into the experimental side of medicine, her right lung was collapsing more and her heart was failing Cassi and I asked her and the doctors to stop fighting. It has been excruciatingly bitter sweet chapter in our lives. We are sorry it has come to an early end. We thank god for all of you who have supported us by any means, cards, calls, visits, posts, or just following our journey we are going to be sleeping and holding one another for the rest of the day. Details on funeral arrangements to come when we know more.
Spinal Fusion Revision
1 month ago
115 comments:
Cassi and Brian,
I am so sorry for you both. I will be thinking of you and praying for you.
Andrea
Cassi and Brian,
My heart aches for you. I wish I had something to say that could take the pain away.
You guys and Elli put up an awesome fight.
I am in such awe over your strength, faith, courage, and love.
Please know we are all thinking of you guys and continue to pray for you.
Love,
Nicole M
Cassi and Brian,
I am so very sorry. Elli was a true fighter. She did everything possible and you should be proud of that sweet girl.
May God bring you peace during this time.
Prayers,
Ana and Marco
Pena Family
Brian and Cassi,
I am devistated by this news. Elli has truly been an inspiration to us all and she has touched my heart in the short time she had been alive. I will be thinking of you both.
Love Amanda
Brian & Cassi,
There are no words that come to me now to let you know how sorry I am. I just want you to know how much my heart goes out to you right now. She was such a beautiful baby and so strong. You both have been through so much and have had a hard 3 weeks, you impress me with your strength.
Love~Brooke
Brian and Cassi, your sweet angel has gone home to be with God but I am so very sorry she left you before you were ready for her to go. Parents should never have to lose a child.
I love you both and you are in my thoughts and prayers.
Aunt Joan
I have been following your blog over the past 3 weeks and am praying for you and your family! We have a friend whose baby is due in 3 weeks with a dx of CDH, so we have been following other posts. Elli was a beautiful little girl who touched many in her short life!
--family in NC
Cassi & Brian,
Ryan & I are so sorry for both you and your families. You have all been so strong through this. You are in our thoughts!
Ryan & Nikki
Brian and Cassi,
We are so sorry to hear about Elli. Our hearts go out to you during this difficult time. You are in our thoughts and prayers.
Scott and Diana Linville
Cassi & Brian,
We are so sorry to hear of your sad loss of Elli,she was a beautiful baby and put up a real fight.
Thank you for sharing your story with us,
Thinking if you all at this sad time.x
Gil & Family
Cassi & Brian,
We are at a loss for words. Our hearts are broken for you and Miss Elli. Your journey with Elli has touched many people across the country, she is loved by so many. Thank you for sharing your beautiful baby girl with us. She is certainly the most beautiful little Angel. Hold on to each other. May God watch over you today and always. Love, hugs & angel kisses to you both.
Love to all,
MaryBeth & Family
Cassi & Brian
There aren't any words that describe how sorry I am for the both of you. Miss "Elli" put up quite the fight and was an inspiration to a lot of people. She was extremely precious and she will be missed tremendously!! Your family is in our thoughts and prayers!
Jon, Abby & Sophia Taylor
Cassi and Brian,
My deepest sympathy to both of you and your families. Elli was a true fighter and touched so many people. You are in my thoughts and prayers.
Amy H.
Cassi and Brian,
I am so, so sorry. She was so beautiful and so incredibly special. She has touched me more than you can ever know.
I will be thinking of you both.
Amy and Liviana
Cassi and Brian,
I don't know what to say other than we are so sorry for your loss. Your daughter was such a beautiful little fighter. Please know that several people are thinking of you.
Corey and Rachael Gray
Cassi and Brian,
I am so sorry for you both and your families. Elli had the best parents possible and I am sure she felt all of your love. The short time she was here you let her know how loved and special she was. You and Elli have been such inspiration to us. You will continue to be in my prayers.
Marilyn
We are saddened by the loss of your little angel. She fought the battle with some great strength! God has placed her in a new journey in his kingdom. She will look down on both of you and know how strong both of you were also and know that she carries each of you in her as you will (of her) in each of your hearts. She was blessed to have both of you by her side fighting with her. Our prayers of comfort are with you and our hearts ache along side of you.
Kevin-Michael-Taylor & Grace Abbott
Cassi and Brian,
I am so sorry for your loss. Praise God for the life of precious Elli-Her life has touched our family dearly, as I am sure she has touched many others. We will keep your family in our prayers,
Much Love and Prayers,
Liz & Rusty Rich
Cassi and Brian,
Am so sorry for your loss. What an incredible journey you've had and your beautiful daughter touched the hearts of so many in such a short time.
My thoughts and prayers are with you.
Joyce
I am so sorry that sweet little Elli passed away. She was so strong and put up a tremendous fight. My thoughts and prayers are with you both.
I am sorry to hear about your loss. Elli has touched so many people around the world. She was such a great fighter through this battle! My thoughts and prayers are with you.
Rosie
Cassi & Brian,
We are so sorry for your loss. Bill and I will be praying and thinking of you both in the days and months ahead.
Bill and Mary Waggoner
We are so sorry to hear of your loss. We've been cheering and praying for her and I just can't imagine your loss right now. You will remain in our prayers.
Brian, Cassi, and families-
I am so sorry to hear of your loss. Your sweet baby Elli has touched so many lives and you have inspired all of us with the strength and courage you have shown.
Know that you continue to be in my thoughts and prayers.
Karie
I am very sorry...all three of you will continue to be in our prayers.
May God Bless you all,
Amber & Jesse Thompson
My heart breaks for you, having been there myself and still going through the battle of grief. Hold your family and friends close, they will get you through this. Every day you had with her was a blessing from God. Our Abrielle couldn't wait to be a big sister, she loved babies. I'm sure she has found your angel and has taken a turn holding her, singing to her, and will look after her until the day you see her again.
The Neff's
I am from the Maryville are andhave been following your blog for the past few weeks and praying for you and your baby girl. I am so saddened by your loss. Your little girl had fought so hard and now she is able to rest. You both are very strong people and have endured so much. I think she always knew that you were there for her every step of the way. Even when you could do nothing but sit and watch her. Now it is her turn to watch out for the two of you and she will be smiling down everyday for being blessed with such wonderful parents. Take comfort in one another and know that there are many people that are thinking of you right now.
Cassi and Brian,
I am so very sorry to hear the news today. I had been wanting to check your blog all morning but had a meeting. I couldn't stop wondering how Elli was doing.
I know personally the pain you are going through, just losing a baby girl 4 months ago. My heart aches for you. I know that I have only been reading your blog for the last couple of weeks, but your family has touched a special place in my heart. I am glad you two have each other to hold...hold on tight. Elli was and is a very lucky girl to have such dedicated loving parents...as you were very lucky to have such a beautiful daughter, and now angel watching over you. If you need anything please contact me...again I know what you are going through.
My prayers and thoughts will continue to be with you all.
Special Angel In Heaven
There's a special Angel in Heaven that is a part of me. It is not where I wanted her but where God wanted her to be.
She was here but just a moment like a night time shooting star. And though she is in Heaven she isn't very far.
She touched the heart of many like only an Angel can do.
I would've held her every minute if the end I only knew.
So I send this special message to the Heaven up above.
Please take care of my Angel and send her all my love.
-Author unknown
Amy
Heaven just gained one beautiful angel, what a precious baby girl you shared with us. My heart hurts, love you both.
It's times like this that words are just so inadequate. I know your hearts are aching terribly, but hopefully someday that ache will be replaced with the joy of Elli's presence in your hearts forever.
You are both awesome and deserve a great deal of rest and all the comfort and peace the Lord can provide.
Carol Mathes
Brian and Cassi,
We are so limited in what we can see. I am sure there is no way you could ever know how many lives your little Elli's life has touched. In a way, it's like she keeps on living through that influence.
But, we are so sad and sorry to see her leave us. Someday, you'll see her again as she is now . . . free of this body that trapped her. I can't imagine how you go about thinking through all this, but know that even through this, God is carrying you.
Jeff and Chris
Kellie just posted this to us and I have been following Elli. No words can every help now but I hope your sweet angel sends you both signs every day that she is always near.
With thoughts and prayers,
Elizabeth
Dear Brian, Cassi and family,
I am so very very sorry for this great loss, I can't imagine the feelings in your heart right now but little Elli taught us all a lot about life and love. She instilled the best in you as parents and us as well as we journeyed with you through the blogs. God wanted her Home now for whatever reason He had. You will see her again someday and she will be whole, no more struggle, all tears are wiped away. God bless you and know that I will continue to pray for you. I will never forget little, brave Elli.
Mary Nord
My heart is aching for the two of you! Elli was very loved by everyone!! Take care of one another! All my love and prayers! Salena
Cassi and Brian,
I am so sorry. I have been following your daughter for a few weels now. Stay strong and know that she is in God's perfect Heaven. She loves you both so much and she knows how much you both love her.
I know that I already left a comment, but I just wanted to let you know that I left something on our blog. I hope that is alright.
Amy
Cassi and Brian,
there is nothing i can say that will help you get through this tough time. just know that you three showed such awesome strength and courage through this. i think that most everyone can say that you all are an inspiration and your precious elliott touched all of our hearts.
Lynn
cassi and Brian,
I am so sorry. I have no idea what to say right now. Derek and I will keep you and your family in our thoughts and prayers. Oh what a beautiful little fighter Elli was. She will forever be remembered and loved by many who never even got to meet her. Find strength in the Lord. Emily
Cassi & Brian,
I'm so very sorry. I can't imagine what you're both feeling - my heart just aches for you as you're missing your sweet baby girl. Elli was such an incredible fighter. She touched so many people and united so many in prayer. Take time with each other now. If you need anything, please don't hestitate to ask. We're praying for you both.
The Millers
I'm so sorry you lost your little girl. Elli put up such a valiant fight and inspired and touched lives around the world.
I think your angel is hanging out with all the other CDH angels comparing notes on what awesome parents they have.
God bless your whole family and in the days ahead I will be praying for strength for all of you.
Paula
Cassi and Brian,
Your journey has touched my heart like it has so many others across the country. I pray that you keep holding onto each other and keep fighting together! Your new angel will be watching over you and taking care of you...she was a very strong fighter. She had great parents that loved her from the moment they knew about her. You will continue to be in my thoughts and prayers! Angie
Cassi and Brian
There are no words that can heal the pain that you are feeling. I am so sorry that your beautiful little girl had to leave all too soon. May she find the heavens and fill it with all of her love and watch over you the same as you have watched over her. God Bless and thank you for sharing your Elli with so many.
The Lang's
B and Cassi,
I am so, so sorry to hear that little Elli has passed on. She put up one heck of a struggle and you should be very proud of your beautiful little fighter.
I know that there's not much we can do or say to make things better, but just know that there are so many people who love you and are here for you if you need anything at all. It is a true testament to what amazing people you both are to have such a support system and have so many people praying for you.
We love you so much!
-Justin and Jenny
I am very sorry for your loss. I am thinking you and your family during this very difficult time.
Cassi and Brian, my heart is breaking for you both and I wish I could take your pain away. I am so very sorry for your loss--Elli so beautiful and will forever be your angel. This song is beautiful and when you get a chance, maybe you can listen to it and know your little angel will be with you always. The song is Glory Baby by Watermark. I have included the lyrics here.
Glory baby you slipped away as fast as we could say baby…baby..
You were growing, what happened dear?
You disappeared on us baby…baby..
Heaven will hold you before we do
Heaven will keep you safe until we’re home with you…
Until we’re home with you…
Miss you everyday
Miss you in every way
But we know there’s a
day when we will hold you
We will hold you
You’ll kiss our tears away
When we’re home to stay
Can’t wait for the day when we will see you
We will see you
But baby let sweet Jesus hold you
‘till mom and dad can hold you…
You’ll just have heaven before we do
You’ll just have heaven before we do
Sweet little babies, it’s hard to
understand it ‘cause we’re hurting
We are hurting
But there is healing
And we know we’re stronger people through the growing
And in knowing-
That all things work together for our good
And God works His purposes just like He said He would…
Just like He said He would…
BRIDGE:
I can’t imagine heaven’s lullabies
and what they must sound like
But I will rest in knowing, heaven is your home
And it’s all you’ll ever know…all you’ll ever know
Thank you for allowing me to share in Elli's journey--you will be in our prayers and thoughts and may God surround you with comfort and peace during this very difficult time.
Tracy Meats - Wyoming State Rep. for Cherubs and mom to Ian (LCDH, 4/3/04)
Brian & Cassi,
Jesse & I are at a loss for words. Continue to find strength in one another during this difficult time. Know that eventhough your little girl is with God now, she continues to live on in your hearts stronger than ever.
With deepest sympathy,
Jesse & Nicholle Kalb
Cassi and Brian,
I'm at a loss for words. I knew she was struggling but just knew she was going to be just fine. She is so lucky to have you as her mommy and daddy. She knows the love you have for her and she will help you through it from above. Please know that I will continue to pray for your healing.
Cassi & Brian -
We are so sorry for your loss. Our thoughts and prayers are with you as you struggle to find peace and comfort during this time in your lives. You gave 110% to Elli in the short time she was here and showed your love to her in the way only a parent can. We know she could see and feel that love in your voices, your touch, your smiles and your tears.
Thinking of you.......
Lanny and Kris
Cassi and Brian,
You both are in our prayers. We are so sorry about Elli. Our hearts go out to you. We lost our niece, who was 3 at the time, to a heart condition she too was born with. She endured many operations during the 3 years she had with us. The one thing little Briley taught us, only being 3 at the time was that they're really never ours to begin with. They are precious angels for God and God sends them to us for reasons that sometimes can never be explained. I know, Elli, as little as she was and the fighter she was, was given to YOU and BRIAN for a very special reason. Everyday you both will be reminded of those lessons little Elli taught you. It's amazing how God uses something so small and fragile to make the biggest impact. Take comfort in each other, for that is what Elli would have wanted as she is with her prince of peace, hurting or being uncomfortable no longer. You guys will continue to be in our prayers daily.
Nate, Shay and Lane Larabee
I am so sorry for your loss. My thoughts and prayers are with you.
Cassie & Brian,
I have been following your story through another CDH baby. I am so very sorry. Just know that Elli touced so many lives in her short time here. We are praying that God will give you strength and peace during this time. Thanks for sharing your journey with Elli with us.
LeAnn Church
Cassi & Brian
Heaven has angel now that is more beautiful than words can describe. You both loved to look at the big blue eyes and now those big blue eyes can now look over you. Little Elli has touched my heart inso many ways even though I didn't get to meet her but from the post and pics I now how wonderful a girl she was because of how well her mommy and daddy posted things about her. My heart goes out to both of you.
Love is like the wind you can't see it but you can feel it.
Happieness keeps you sweet,
Trails keep you strong,
Sorrow keeps you human,
Failure keeps you humble,
Success keeps you glowing,
But only god keeps you going.
Love Emily
Brian and Cassie,
I am really sorry for your loss. She was so beautiful. I want you both to know I am thinking and praying for you.
MIchaela
Cassi and Brian--I can't pretend to know what to say right now. Your family captured my heart even before Elli was born. Thank you so much for sharing every part of Elli's journey with us--her ups and downs, her sweet face, and mostly her loving parents. Our prayers are with you that you may find peace and healing.
Kristyn
Cassi & Brian, my heart goes out to you, you all have had such strong faith and strength with Elli, God has a much bigger plan for her and always know her love for you will always be with you in your hearts forever. Our prayers, Ann & Roger
Dear Cassi & Brian,
We are so sorry for your loss, Elli was a beautiful baby. Know that Elli loved her Mommy and Daddy and she knew how you both loved her. God has wrapped his arms around her and he will give you both strength as you go through these next days and months. We are praying for all of you: Cassi, Brian, Grandparents, Aunts & Uncles.
With Sincere Sympathy and Love,
Paul & Debbie
Brian and Cassi,
I am at a loss for words. Please know that your family is in our prayers and thoughts.
Thank you so much for sharing sweet Elli with us.
I know I already posted, but can't get you guys off my mind. I wanted to tell you what wonderful parents you are. You did the hardest thing ever...let your little girl go. You were strong enough to tell her it's ok to stop fighting even though you didn't want to. You were brave enough to stay with her until the very end. We are here to help you on this journey if you need us.
The Neff's
Brian and Cassie,
I am so sorry. Elli was such a strong and brave little girl. i will be praying and thinking of you both.
Kristy, mummy to angel SKYLA LCDH
cassie and brian, just wanted to let you both know that you have been in my mind all day long. elli is so lucky to have the two of you for parents. tj and i have been keeping track of you guyz the last several months and my breath has been knocked from my lungs for you all right now. let us know if we can do anything for you. love and prayers. bridget
I'm another one of those people you don't know who found your blog through the maze of the blogger world (a friend of a family member is expecting and part of the CDH network).
I've been following your family's story and my heart aches for you all.
I hope it's some comfort to know that your love for you daughter has touched and inspired people far and wide, and that strangers will be holding you in their hearts during this difficult time.
Brian and Cassi
We are so sorry to hear about Elli. You all are in our thoughts and prayers.
Thomas and Amanda Linville
and family
My heart aches for you and your family. You are in my thoughts and prayers.
Aimee
Dear Cassi and Brian,
I found your site via Amys site and I want to let you know that you will be in my thoughts and I will pray for you. I lost my 9.5 months old beautiful babygirl about 4 months ago and can imagine what you went through and what you are going through the next time. I am so very sorry for you. Parents shouldn`t make those experiences. It`s just not fair.
Love from claudia, who is actually from Germany but in the Netherlands at the moment, with sweet little Mia always in her heart.
I am so very sorry for your loss...what a beautiful angel.
Cassi and Brian,
Just wanted to say that i am truely sorry and that you guys are in my thoughts and prayers!! love ya guys! Becky Phelps
Cassi and Brian, I am so sorry for your loss. You and your families are in my thoughts and prayers. God Bless. Jenny Brown
I am so sorry. I see her in heaven with our family, safe and surrounded by love. Always treasure the precious moments you shared with her.
Love you,
Chrissy
Cassi and Brian,
I'm truely sorry for your loss! Even though Elli was only here for a such time she did so much. through your generosity of sharing your journey. Elli had touched soo many hearts. I know she touched ine more than I could even imagen anyone could. The simple truth in life is there are things we will never be able to understand and in moments of sorrow the questions fly.. there isn't much I can say to mek things better but I did want you to know your story and your little girl ellis strenght through it all touched my life.
Cassi and Brian
I am so terribly sorry for your loss. I know their are no words I can say to make the pain you must feeling go away.My heart aches for the both of you. Elli as made a huge impact on me. She was such a brave,strong little girl and she fought so hard.I will always remember your sweet little girl.
Amber
My Child
(Author Unknown)
If I could have a lifetime wish,
A dream that would come true.
I'd pray to God with all my heart
for yesterday and you.
A thousand words can't bring you back;
I know because I've tried.
And neither can a million tears;
I know because I've cried.
You left behind my broken heart
And precious memories too.
I never wanted memories,
I only wanted you.
~We are sorry to hear about your precious baby girl. She fought such a couragous battle. Our thoughts and prayers are with you during this difficult time.
Family of a CDH child,
San Antonio, TX
My Child
(Author Unknown)
If I could have a lifetime wish,
A dream that would come true.
I'd pray to God with all my heart
for yesterday and you.
A thousand words can't bring you back;
I know because I've tried.
And neither can a million tears;
I know because I've cried.
You left behind my broken heart
And precious memories too.
I never wanted memories,
I only wanted you.
~We are sorry to hear about your precious baby girl. She was such a little fighter. Our prayers are with you during this difficult time.
Family of a CDH child
San Antonio, TX
I am so sorry. What a brave baby, and now she's with Jesus. My heart breaks for you two.
I'm so very sorry for your loss. I know the pain and pray for healing through your grief. I am originally from Kansas City and know that you had the best care possible. ~Heather - mommy of Bryce - www.brycesouthwell.com
You are in my thoughts and prayers. I am so sorry for your loss.
~Carole
http://beyondthejourney.wordpress.com
Cassie and Brian,
Matt and I are praying for you and your family. Today our arms are aching as we would love to hug you both. Please reach out if you need anything.
Hold onto one another and know that Elli made a difference in this world and we are all better people for knowing her. Thank you so much for sharing your beautiful daughter with us.
I am at a loss at what to say, my heart is breaking for you both.
Something that I have been told many times, "God only gives you what he knows you can handle." He knew you would be such AMAZING parents to this little girl & that you would fight for her & with her & give her every ounce of your being every second of the day. Be proud not only of Elli but of yourselves. You are an example of what every parent should be. Just know that while you are holding each other, Elli has her beautiful new wings wrapped around you both.
Thinking of you with love,
Craig & Andrea
Brian and Cassi, I am a loss for words. I am hurting for you in your time of sadness. You two are Elli's heros. You were strong enough to tell her it was ok to quit fighting. The strength you two have to be able to do that is incredible to say the least. Little Miss Elli will never hurt again and she can breathe for the first time on her own. You are in my thoughts and prayers.
In Christ's Love,
Amy Sanford
Brian and Cassi,
I am so sorry to hear about Elli. I will continue to put you both in my prayers.
Cassie and Brian,
I am so very sorry for your enormous loss. My heart goes out to you. God must have bigger plans for your little angel up in heaven. Elli was blessed with the best parents, and you did a super job! Always remember that! She touched my spirit in so many ways, knowing what a fighter she was made me want to fight harder in my life! I am so proud of your fight as husband and wife through this journey. May God be with you on this sad day! Cassie, I remember how scared you were at first, but you were a trooper.. I love ya!
Lindsay
Brian & Cassi, We are so sorry for your loss, our hearts really ache for you. Cliff, Kristy & Hannah
Cassi and Brian,
I am so very sorry for your loss. Elli was an amazing little fighter with awesome parents.
Linda
Cassi and Brian, I am so sorry for your loss. My prayers are with you.
Cassi and Brian,
So sorry to hear about little Elli. The three of you have inspired so many people. May God be with you during this difficult time.
Brian and Cassi,
We were so sorry to hear about Elli. We can't begin to imagine what you must be feeling right now, but know that heaven is now a better place with Elli there. You guys were such great parents. Elli knows that you were there for her everyday and that you did everything that you could do for her. In that regard, Elli was a very lucky little girl. She touched the lives of so many people in her short life. We will all miss her.
We are so very sorry to hear of your loss. Heaven has truly gained a beautiful, precious, and strong little angel. Thank you for sharing your precious Elli with us. She has left a lasting footprint on our hearts forever. All 3 of you are an inspiration. We will continue to pray for you and the road ahead.
Love,
Colin, Brandi, & Grace Ricci
Brian and Cassie:
Shana and I are so very sorry for your loss. We were all rooting for Elli against all odds. She put up such a brave hard fight. You are the best parents she could have ever asked for!!! I know there is nothing we can do, but we are here if you need us.
Love Lana and Shana
Cassi and Brian,
Words can not even explain my sympathy/empathy. You are in my thoughts and prayers. Elli put up a great fight. You and Brian have great strength and I will think of you during this time of grieving. Your little angel loves you and knows how much love you have for her. Let me know if there is anything I can do.
All my love,
Kim
oh gosh i am soo sorry and i want to just cry cry cry i got on for my daily check up i i like allmost trow the computer down and i am crying i almost nerly had a heartattack and my mom was like what what i am so sorry but god takes the best of them well if u would like to email me ask staci she has it i am sorry for your loss its a loss to everyone that they ever saw the cute baby!!!! got to go i love u and brian love shana and the smaus family
Cassi & Brian-
Elli was so beautiful and so brave and strong, like her mommy & daddy. I wish you all peace during this difficult time.
Thank you for sharing your sweet Elli and yourselves with us. My heart has been touched by your family.
xoxo
Libby
Makena's Mama
Cassi and Brian,
Please accept my deepest sympathy. There are no words to comfort you or take the pain away, but know that you are in my thoughts and prayers. I pray that the precious memories you made in the short time Elli was here will help you on your journey to finding comfort and peace. My heart aches for you.
I am so sorry for your lost. My pastor once said if only old people where called home to Heaven what a dull place it would be. Jesus needs little angles too. Elli is watching over you two and she knows how much you love her - enough to let her go. Someday you'll all be together again and what a glourious reunion that will be.
Joni in FL
Cassi and Brian,
Words cannot begin to ease your pain. Know that friends, family and neighbors are continuing to pray for you all. You have amazed me over the past few weeks. Hold onto that tremendous srength and faith.
Pam and Roger Mass
My thoughts are of sadness, my prayers for strength for Cassi and Brian. Pull from the love and support that surrounds you. The road ahead is long and hard.
Venus Standard, RN
Jessica and Parker Singletary’s nurse
The Parker Reese Foundation
cassi and brian, i have watched elli's story unfold on the side lines, however have kept you all in my prayers, i am so sorry that you have had to have this journey with elli, however i hope and pray that you will one day know peace and look back to your time with elli here on earth and cherish those amazing moments. your heart and soul aches and will until the day you meet her again, however the lessons your sweet girl has taught you will continue to grow as will your love for her. when we lost our aubrey to cdh we told everyone that she taught us things most people have to wait many years to learn from their children, somewhere in all the pain we are blessed, it is just hard to always look for the silver lining.
take care and know that you are in my prayers as well as elli, who now knows what it is like to be perfect in every way.
Precious Brian & Cassi,
Elli was greeted in heaven this morning by God and an amazing group of family and friends. I know Grandma Bonny & Grandpa Al were first in line to welcome her and hold her in their arms. Elli is now safe in heaven where there is no more pain and no more suffering. My heart breaks for you...we send you all of our love, support & prayers.
Loving you always,
Aunt Jill, Uncle David Talbot, Lindsey and Spencer
Cassi and Brian,
I am so very sorry about Elli, she was such a fighter and a beautiful baby. She will always be with you in heaven. Our thoughts and prayers are with you.
Gina
Wyatt's Mom
Brian and Cassie,
Bill and I are so sorry to hear this terrible news. No more fighting for that beautiful baby. She is in a better place now. If there is anything we can do just let us know. We are here for you both.
Stay strong and God bless you,
Bill and Stella
So very sorry for your loss. I pray the Lord will surround you with His comfort during this difficult time.
Blessed are they that mourn: for they shall be comforted. ~Matthew 5:4
Cassi and Brian,
I was so sorry to hear about Elli. I have been following your blog daily since Elli was born.
I know that Elli is in heaven with God and that he is also by your side. All of my thoughts and prayers are for you and your family.
Dear Brian and Cassi,
I am so sorry for the loss of your sweet little Elli. You have all fought so hard and I wish that she could have stayed with you for thousands of days. You are awesome parents and you gave little Elli a voice when she didn't have one. You also gave her the chance to fight and also the chance to go with great dignity and grace. I can't imagine.
Please know that you both are in my prayers.
darcy
Annie and I love you both and Elli very much. Wanted to call today, but can't even begin to put into words what to say except we love you and will support you always! You are truly an inspiration to your big brother! Big hugs and kisses. Call or text if you need anything!
Love,
Corey & Annie
Cassi and Brian,
I have been following your blog for sometime now. My son, Jeb, was born 2 1/2 years ago with CDH.
I was so excited to hear that Elli was doing so well. I loved the videos that you shared on your blog. She is absolutely a gorgeous little girl. I hadn't checked the blog in a couple of days, and I am devasted to hear of her passing. She really was a fighter, and although her stay here on Earth may have been short, she will forever be remembered by my family and all the many others whose lives she touched. I am so very sorry for you all.
Your family will remain in our thought and prayers,
Crystal Rine
Brian and Cassi,
We are so very sorry for the loss of your beautiful little girl... even though we never met her (or you both), I truly felt like I knew her from your blog- she was so precious. I know she could feel your presence and love as you were with her through her toughest hours- you both will continue to be in our prayers as you walk through this incredibly painful time... I am at a loss at what to say because nothing can take away that sort of pain, but just know that you all are very loved, as was Elli. Beautiful, beautiful girl. Love and prayers, Joe and Melissa Adam
Cassi and Brian,
I'm not sure if you remember me but I'm a friend of Darci's and met you at she and Heath's apartment once a long time ago. I can't even imagine having to go through what you have gone through but I want you to know that I think you both are incredibly strong, loving people. Your sweet baby couldn't have asked for more strong, devoted people as parents. I hope that you'll remember forever that you were the absolute best parents you could've been to Elli and that is all anybody could ask for. I admire you both very much and want you to know that Elli touched me very deeply even though I never got the opportunity to know her.
Ashley Leach
Wow, Cass, this really is "bad news bears". You and Brian are such phenomenal people. I admire you so much for your strength and commitment to one another and to Elli. I'm so sorry that she lost the fight. She was a beautiful baby girl! I was so looking forward to kissing those cheeks and a chance at a diaper change myself. It's been wonderful being able to watch you two do all that. Thank you for sharing her with all of us.
God bless you, love, Sandi
I am sorry for the loss of your daughter. We will keep you all in our prayers.
Ashlea
I learned of your blog from Amy at "kaden and angel ava's mommy" blogspot. I came here and read your entire blog from beginning to end and I had to tell you how heart sick I am for your family.
Elli was/is a very special girl and is so beautiful! I have never been through this but I can just imagine the pain!
Keep your chins up and know that Elli is your special angel now and not everybody gets that.
You will be in my prayers forever more!!!!!
Rachel
Brian and Cassi,
Words can't explain how Mike and I are feeling for you and your family right now. The three of you have been so strong and brave through all of this. I am at a loss of words for you right now. We will be thinking about you and saying many prayers to keep you strong. Your sweet Angel Elli put up a strong fight. We love you and will see you soon.
love ashley and mike
Cassi and Brian,
I am SOO sorry to hear about your loss. Elli touched so many peoples heart and you guys did an awesome job of bringing awareness. Thinking of you guys and praying for you.~ Miranda
Cassi and Brian
My stomch and heart hurts so bad for you both right now... I am so glad you kept the blog. I know it seems silly but I felt such a part of everything and shared it with a lot of people who were praying for Elli. Nothing anyone can say or do is going to take the pain away. All I can think about right now is when Staci found out that Gramma Bonnie had passed away and Staci asked me to pray with her...I know Gramma Bonnie is holding Elli right now and I pray that you and Brian keep holding on to each other and find strength to get through this together.
Lots of love and prayers,
Lara
Cass-
Thinking about you and Brian. I have been reading your blog over the past weeks. I hurt for you and will continue to keep you in my thoughts. You have always amazed me with your strength and clearly you passed that on to Elli. Praying for you.
Love,
Meggie
Cassi & Brian,
My thoughts and prayers are with you both. Elli touched our lives by showing us how precious and beautiful family is. I know she is now watching out for all our CDH babies from above.
With thoughts & prayers,
Vicki
mom to Jack
Cassi and Brian,
I sit here trying to think of some words of comfort but none come to mind. I have two children with cystic fibrosis and there will come a time I will have to make a decision like you did. I only pray that I can do it with as much grace and love as you. I too am a nurse like Cassie. I work in the ICU and see a lot of suffering. The thing I can say is you loved her so much you let her go! I know it is hard to understand why God would give you such a precious let little baby only to call her home so quickly. Just know he has a plan! If for anything her purpose was me. I fear the time when I will have to make those decisions at times the fear consumes me. Will I be strong enough? Can I endure such a loss? Your journey with Elli showed me that even though it wont be easy it can be done. As long as long you keep your faith and continue to love each other it is possible. You and your precious Elli have touched so many Lives. You are in my prayers
Prayers from Quincy Illinois
Brian and Cassi,
We are sorry to hear of your great loss. This blog is such a wonderful thing to do to keep her memory alive. What a precious baby girl. We will be praying for your family.
Adam, Allison & Kaitlyn Otte
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