Elliott Arcile Reed

Elliott Arcile Reed
6 lbs 8 oz 19 3/4 inches

Wednesday, September 3, 2008

Goodbye Mr. Silo

This picture was taken on Monday, thought it was a cute one. So Bright Eyed!

Right after surgery, so sleepy.


SugarBear and Elli showing off their stomachs.


Just a couple hours after surgery, so tired but need to sneak a peek of mom and dad. (I think I have seen Brian do the "one eye" look before too!)


Elli came through her surgery doing very well. They were able to fit all of her intestines, stomach, and spleen back into her abdomen by the aid of an Alloderm patch. The patch is between the skin and the muscle attached to the fascia. The surgeon said that her tissues will grow into the Alloderm patch and there will be no need to have it removed. They were able to close the skin over top of the patch so it just looks like a long incision below her left rib cage. Basically the only complications of the Alloderm patch is a possible hernia in that area when Elli gets older since the abdominal wall has been compromised.
Dr. K was by Elli's side during the surgery and didn't even have to change any of the vent settings. He said that Elli did great during the surgery and she had very minimal blood loss. The surgeons decided to remove Elli's abdominal drain but left in the chest tube. So far her gases have looked pretty good and they still haven't had to adjust any vent settings...GO Elli!
Elli is still pretty sedated, considering that the doctors gave her enough paralytic drugs to knock down a horse. She did open her eyes just a little bit tonight when the nurse and I were repositioning her. She is finally able to tolerate lying on her side without her saturations plummeting. She looked pretty comfy not lying on her back. Hopefully the nurses will be able to change her positions more often so some of the edema in her head will start to work it's way out. She has a pretty bad flat spot on the back of her head from lying on her back since her surgery on Sunday. Other than that we are pretty much just hanging out, hopefully the next couple days will be pretty slow, letting Elli rest and recover, and then we can work on weaning down the vent settings. The nurses did start some Nystatin powder for Elli's "double chin" since it was getting a little most from her neck and upper chest being swollen.
Well it's almost midnight, hopefully her blood gas will look good, so far she has been pretty quiet but woke up for just a bit, but seemed pretty agitated so now she is getting some happy meds to help her rest.
Thank you to everyone that has been following the blog not only today but Elli's ongoing journey. It seems like yesterday and yet a life time ago that I had Elli. Brian and I are just so in awe of how strong Elli is, this tiny baby enduring her 4th surgery in 2 weeks. She is such a blessing to Brian and I and has been an inspiration to both of us. She continues to amaze us daily with her strong will and fight. Thanks again for all the support...Brian, Cassi and Elli

27 comments:

Grandma Reed said...

Amazing! Elli looks wonderful. It is hard to believe she's had so many surgeries. She looks so comfortable without the silo. That just looked miserable. Maybe we all will sleep better tonight.
God I thank You. What a blessing you have given us! Guide and direct us in all that we do. AMEN
I love you all 3!

Grandma Reed said...

I love the pictures you take, Cassi. I just had to look one more time before I go to bed.
Hopefully you are asleep and all is well. Thanks for doing this blogspot. It is such a relief and a joy.

cbgricci said...

Glad to hear surgery went well. Way to go Elli, you are such a strong little girl! Hopefully mommy and daddy can get a little rest. Thanks for the pictures. Elli is adorable. We will pray for quiet days.

Love,
Colin, Brandi, & Grace Ricc

Anonymous said...

She looks so beautiful and peaceful after surgery. Sounds like things are going a little smoother. We've all been thinking about you at St. Francis and saying many prayers. Thanks Cassi for taking the time to keep us all updated and for letting us into your world with pics and videos. You are doing a fantastic teaching job! Take care..we miss you! NHurst

amberthompson said...

What a fighter you have there! Glad to hear surgery went well. I agree, she looked so uncomfortable with that silo. What a beautiful face that angel has. Hope all went well through the night and today is a great day. Prayers for a boring and restful day!

God Bless,
Amber & Jesse Thompson

"Auntie Staci" said...

Good Morning Baby Elli,
You look absoultly amazing, your lil eyes sparkle soooooo much when you ruffle them!! You r one tough chickey!! I love you so much and want to come down and see you soon! Hopefully next weekend i will be able to break away and come back down and we can get a jump start on that reading again! Until i see you again my lil princess!
Love,
Auntie Staci

C & A V. said...

Yea! Super Elli has done it again. She looks so happy sleeping with her Sugar Bear. The three of you have incredible strength and faith. I am in awe of what miracles have happened since Elli was born. God works in mysterious, but good ways. Give Elli a kiss from Uncle Corey and Aunt Annie.

Aunt Annie

*super dude and super dog* said...

YAY!!! The pictures are beautiful and we're so glad that the surgery went well. She's so amazing and Elli's fight gives us so much hope that when Carter gets here in a few weeks, he'll do great like her.

kmm0305 said...

Elli is such a cutie, even with just one eye open. ;) So glad things went well with yesterday's surgery, what a little fighter! She is going to have some cool "battle wounds" to show off on the playground someday. Brian and Cassi, you are doing such an awesome job of being Elli's parents--thanks so much for letting us all share in your miracle.

shaylane said...

WAY TO GO, ELLI!! YOU ARE SUCH A FIGHTER. THANK YOU FOR ALL THE WONDERFUL PICTURES, CASSIE. IT'S AMAZING TO SEE HOW MUCH SHE HAS GROWN AND CHANGED. SHE IS SO BEAUTIFUL. PRAYING YOU ALL HAVE A RESTFUL AND PEACEFUL DAY.

NATE, SHAY AND LANE LARABEE

Hope for congenital diaphragmatic hernia said...

I also have a daughter that went through cdh.(avaslifewithcdh.blogspot.com and cdhawarenessvideos.blogspot.com) Wow the fighting these tiny newborns do! Elli is amazing and you two are wonderful parents. She, you and your families are in my constant prayers.

"Keep holding on Miss Elli. Life is definately worth the hard work!"

Jill said...

Dear Brian & Cassi,
Praise God! Thank you for sharing the good news about sweet baby Elli! You have a beautiful, sweet, amazing little girl. She has been though so much...I can't wait till next year at this time when she is on the run. Praying all continues to go well. You are in our thoughts and prayers always!
Love to your family from ours!
DJTLS

Auntie Annie's Mom said...

What a relief and joy to hear that Elli made it through this latest surgery so well. And what a great way to start my day by looking at her latest (adorable) pictures. Thanks for sharing her progress and pics with her many followers. I'll keep praying as Elli writes her next chapter!

Carol Mathes

Schoeberl Family said...

What a beautiful, strong baby. She is meant to be here for the long haul. Stay strong!

Paul & Debbie Rollins said...

Dear Cassi & Brian,

So glad Elli's surgery went so well. Kim just heard about Elli and sent your blog to us. We will keep all 3 of you in our thoughts and prayers.

gma2be said...

OUTSTANDING!!!!! God has done it again. Kept our little Elli safe. We are so thankful. She is so beautiful. Makes my arms ache to hold her. Brian, Cassi & Elli, you are an inspiration for faith and perseverance. Little steps for great rewards. We love you so much and admire your strength.
Hugs & kisses to Elli

nicole said...

The pictures are so cute, she is so beautiful!
Elli is such a trooper with all that she's endured in her 2 wks of life!
Hope the next few days are restful for all of you!!!
Thanks for the updates!

Nicole M

KayS said...

Brian & Cassi,
So glad to see surgery went so well--Elli is one tough lil gal!! You two are amazing too--your strength & how you kept this site posted thru it all. Thanks for keeping us all updated & for the pics./videos. She is so adorable!! Keeping you 3 in our prayers. God is awesome!!!!!
Love, Kaylene, family & Wanda

Jerad and Amanda said...

Way to go Little Elli!! Such a strong little girl.

abby taylor said...

Outstanding!!! She looks so much more comfortable without that silo. We are still keeping her in our thoughts and prayers. I bet you guys can't wait to finally be able to hold your little angel. Keep fighting "Elli!!"

Abby Taylor

gma2be said...

Just grandma again, checking for updates. Even when there isn't an update, can't resist looking at our beautiful Elli. Hope she is getting stronger by the minute! Hope mom and dad are able to "breathe" a little easier! Love and hugs and kisses to Elli

mommy to Kaden, Brody and angel Ava said...

Elli looks GREAT!!! I am glad she is doing well. She is a beautiful little girl. Don't worry too much about the flat spot in the back of her head. Soon enough, you will be holding her (she'll probably be in your arms more then in her crib) and it will round back out. Maybe soon, the nurses can try putting her on her stomach, Kaden loved that.

Again I am so glad that she is doing so great. She is not only an inspiration to you two, but to everyone who is following her journey. Stay strong Elli!!!

Amy

Schoeberl Family said...

Your little girl is so beautiful, we must have the most gorgeous girls on the planet! My classroom has been checking in to see how little Elli is doing and we would love to make and send cards to the families that stay at the Ronald McDonald House. I hate to ask but at some point on one of your blog's could you let us know where to send cards? Thanks and we are all sending you good wishes and prayers!
Jennifer Schoeberl and the Third Grade Class

SalenaZarb said...

Way to go Elli!!! What an amazing little girl!!! All of my love-Salena

Tracy Meats said...

Elli looks great without her silo! Happy to hear that the surgery went very well. Many more prayers your beautiful little girl will continue to amaze you and she is on the road to recovery from all of her surgeries. Many prayers that she continues to get stronger and her vent settings will be decreased and may there be no hurdles in Elli's way. YOU ARE DOING AWESOME ELLI!!! Hugs to the Reed family.

Tracy Meats - WY State Rep. for Cherubs and mom to Ian(LCDH, 4/3/04)

shanacnest said...

oh elli
u r one tough
little girly
i am just so glad everything is good so far and i hope everything goes and stays safe and on a good path and that sometime u can come
down to treynor and see auntie staci and you can c me at cardinals nest and i can tell
u how cute u r love u much love shana and lana

Meg said...

Checking in on Sofia's pal Elli and was very happy to see this post's title! You've got one heck of a belly there Elli. Wear it proudly. [You too Sugarbear].